About Leap

Leap is a family-led, non-profit organisation that works with children and young people with disabilities and their families.

Leap is a family-led, non-profit organisation that works with children and young people with disabilities and their families. We work with families, their supporters and allies and their communities of place. We focus our efforts on increasing expectations of what is possible in the lives of people with disabilities. We assist people and families to take action on what matters to them towards the goal of a good life, an ordinary life.

We assist

We assist families to build a vision of a good life and focus on relationships, belonging and socially valued roles for their family member with a disability. Leap works with families to develop their leadership skills by increasing their understanding of how to bring about positive change in the life of their family member with a disability.

We understand

We understand that when families are in a state of resignation and/or hopelessness and have not had opportunities to access support, they frequently place the responsibility for a good life at the door of the service system.

We actively support

We actively support the least restrictive, most inclusive environment for people with disabilities

We provide

We provide a range of opportunities for families to develop the skills and knowledge necessary to effectively promote the uniqueness and interests of their own family member. We base our educational work on powerful theories and approaches including Social Role Valorisation (SRV) and Asset Based Community Development (ABCD).

We encourage

We encourage families to move away from a focus on the persons impairment and toward a more holistic understanding of what the person and family wants.  People and families’ fundamental needs are for inclusion, participation relationships, value and respect.  From this perspective, we support the full inclusion of people with disabilities and do not promote models which advocate separate settings.

We know

We know that people do better when their families are vested in their future, are connected to positive networks and are imbued with a sense of hope.

Our Vision

Inclusive Neighbourhoods

Our Mission

To assist families to take action for an inclusive life

We value:

An inclusive/ordinary life
Community capacity
Never giving up – persistent and consistent
Connection and collective action
Belonging
People with disabilities as being of equal worth and value
Families as foundational in their capacity to pursue inclusive lives and drive social change

Who we are

Leap started out in 2009 as a group of family members and professional allies (people who worked in services who knew the system and who were invited in to support family members in doing things a different way). Each person in the group believed that families needed support to imagine and create an inclusive life for their son or daughter, brother or sister.

The group came together to coordinate a suite of training for families of people with intellectual disabilities and Autism in areas such as Circles of Support, Communication, Person Centred Planning, Advocacy etc. In 2011, Rachel Cassen and Claire Murphy ran a number of Family Leadership Adventure Breaks where families got an opportunity to come together and talk, have fun and learn together and Leap as a social enterprise was born.

The duo won a Social Entrepreneurs Ireland Elevator Award in 2012 in recognition of their work. Today, Leap is led by Rachel who is supported by a number of associates who believe in the vision and values that Leap is working towards.

 

TESTIMONIALS

Leap provided us with fantastic support on working with families. The two days of training they delivered provided staff with an honest platform to discuss proactive ways to engage families, to understand what is service business and what is family business, as well as reflection on their roles. The training provided a way of valuing and enhancing the role support workers provide and feedback indicated staff really appreciated the opportunity to learn and develop their skills and understanding. We look forward to working with you again! Thank you.
RehabCare

May 2016

When I came away after the Leap weekend I was on fire. I really think it’s the way forward and it has really filled in the gap in my head that was missing. I think it’s brilliant for all agencies to be involved but I think the real change has to be on the ground through families! Families and their aspirations for their loved ones really change things especially in extended family, neighbours, community and society. Always remember you can read books, study it but we are the ones who live and breathe this every day of our lives.
Parent who attended Family Leadership Adventure Break

April 2016

OUR TEAM

Rachel Cassen

Rachel Cassen

Director of Leap

Rachel is the Co- Founder and Director of Leap. Leap is a family-led, non-profit organisation established in 2012 that assists families of children with disabilities to take action for an inclusive life. Rachel believes that families are foundational in their capacity to pursue inclusive lives and drive social change. Rachel has grown Leap to become a community of families who can access really useful knowledge and support from one another in order to navigate life stages and to stay on an inclusive life path.
Rachel thinks that it is through people’s connections that change happens and that it is our relationships that pave the way for us to imagine, experience and enjoy a life rich in opportunity and personal growth.
Trevor Hewitt

Trevor Hewitt

Inclusion Facilitator

Drawing on over a decade of experience in the community and voluntary sector, Trevor is passionate about creating the right environment for people to enjoy an inclusive life.
In 2011, Trevor was introduced to a theory of practice called Social Role Valorisation (SRV) which has been transformative in his work. Trevor’s implementation of SRV in his own work has acted as a catalyst for change and helped break down the barriers that can get in the way of people achieving a good life.

Trevor takes a continuous approach to education and self-improvement by regularly attending relevant workshops and seminars and by keeping up to date with international best practice. Trevor has an Honours Degree in Social Policy. He has experience in the areas of change management, meaningful employment, workshop facilitation and policy formation.

He holds a black belt in karate as well as being a keen sports and music fan. Trevor is married to Angela and they have two daughters.

Keara Campbell

Keara Campbell

Chairperson

Keara Campbell is the mother of three teenage boys and lives with her sons, her husband, and their dog in the West of Ireland. Keara is a nurse and the current Chairperson of Leap. Keara became involved with Leap after attending one of their Family Leadership Adventure Breaks in Cavan in 2012. Keara’s middle son has just begun his secondary school education and Keara is actively advocating for his full inclusion in school. Keara is leading out on a new initiative for families connected to Leap called ‘Families for Inclusive Education’. Keara has co-facilitated Leap workshops, and was a presenter at Leap’s seminar on Inclusive Education in TCD in 2019. Keara and her family have travelled to North America immersing themselves in further learning opportunities with organisations that promote an Inclusive life for people with Intellectual disabilities and autism.
Deirdre Graham

Deirdre Graham

Board member

Deirdre Graham is the mother of three school-going children. Deirdre and her husband promote a vision of an inclusive ordinary life for all their children. Deirdre has commenced a Hardiman Scholarship PhD in NUIG exploring the perspectives of parents on the barriers and facilitators to achieving an ordinary life for their child with a disability. Deirdre is passionate that every child’s ability should be recognised and included in all aspects of life, towards the achievement of whatever goals and vision they aspire to.
Patricia Murphy

Patricia Murphy

Board member

Patricia Murphy is a single mum to two young teenagers and works as a Helpline Adviser with MABS (Money Advice and Budgeting Service). In 2013 Leap opened her eyes to the hope and possibilities of an ordinary life, a good life for her son with Down syndrome and her family. She began to understand the beauty and simplicity of intentional acts to ensure that her family is an active part of their community and the give and take that involves. This, alongside planning sessions facilitated by Leap, has led to real positive outcomes in Patricia’s family’s life. She is also a member of Leap’s ‘Families for Inclusive Education’ group . Attending the local secondary school along with his sister has been a huge boost for Patrica’s son’s standing in the community and his own expectations of an ordinary life for himself.

Joe Mullen

Joe Mullen

Board member

Originally from Sligo, Joe is a father of 3, two boys and a girl living in Galway in the west of Ireland with his wife Claire. Joe is an engineer by profession and is active in the local GAA and school. He became involved with LEAP when he and his wife joined their Family Leadership Webinar Series. Having started on this journey of inclusion with their middle son Dylan, the series really spoke to both of them. Joe strongly believes in inclusion for everybody, no matter what the challenge being faced by that person.  He maintains you can effect change by the smallest of gestures when well supported and informed.

If you have any questions please contact us

In 2015 we attended a one day workshop run by Leap focused on empowering families towards creating an ordinary life for their child with disability. At that point we had been learning to live with a complex physical and intellectual disability diagnosis for our son Ed. We could not articulate what we wanted for him, but we were certain that we did not want him to experience a life of exclusion and special, away from his siblings and other children.
Following the workshop with Leap we started to understand that we needed to change our language and how we spoke about Ed towards a strength based, positive articulation of who he is. We sat with our children and discussed what they imagined a good life to be, and interestingly all three held the same hopes for their life. The reality that we could be the leaders in Ed’s life while he was growing and navigating his childhood became obvious. We started to outline a vision for Ed’s future, one where he would work within his community, within a valued role, contributing his expertise and value in a meaningful way. This vision became our destination and all decisions that we make are guided by it.
Recognition of Ed’s strengths provided a foundation for decision-making for Ed. It assisted in the decision around where he would attend school. Ed attended mainstream primary school, and remained in his class every day with the support of a shared SNA. We were able to outline our vision clearly to each teacher and as a result they applied their expertise to ensure that Ed was educated using a universal design for learning approach. This allowed him to demonstrate his understanding of the knowledge gained in a way most suited to his strengths. Ed moved on from primary to secondary school. Again, thanks to the language learned and support from Leap, Ed continues to enjoy his educational journey, surrounded by his peers, in an inclusive classroom. Ed is being knitted into his community, willingly, and he is experiencing a welcome that is true and genuine. It is not based on a “special needs” approach, but rather it is based on a recognition of his unique abilities and wonderful imagination and creativity It is tempting to pick the safe route for my wonderful son, yet the” tougher” route will be the one that provides a more meaningful and fulfilling future.
Today Ed will be attending the local drumming camp. He will independently take the bus there and back. He will hang out with his peers. He will have the life of any other 14 year old. We do not need to access service, he is entitled to July Provision, but because he is knitted in community, he does not need it. This has not happened by accident, rather it has been intentionally created by his family and friends with the support of Leap, buoyed by the vision for his ordinary life, his good life.
Ultimately our vision remains unwavering; Ed will work in a paid job where he thrives, included and valued as part of his community. He will live interdependently, supported by friends and family. He will live a good life, thanks to the support of Leap in helping us to articulate and clearly outline our vision for his future.

D. Graham

Parent, 2024

I learned more from the Leadership for Inclusion weekend than I thought possible, it was very powerful shared with like-minded group of people who want their son or daughter to live an inclusive, ordinary life. These are the moments where ideas grow wings and fly and our children and young adults get to live happy, fulfilled, inclusive and ordinary lives. I left Galway with fire in my belly. 

S. Glennon

Parent, 2024

The work that Leap do is crucial. Without their experiential wisdom and training for Families, the life our family member would have taken an entirely different trajectory. They have been instrumental in keeping us on track to create a good life for our son, where he is a valued member of society. The weekend workshops have given us the resolve to carry on. It’s really important to meet other families, hear their stories and to support each other on our journeys. We have learned that an ordinary life, not a special one is what makes for a good life. Everyone has a different type of intelligence and has something valuable to offer their community. It is crucial that Leap continue their good work, offering more workshops to other families to support our often invisible citizens to be fully visible and celebrated for who they are.

F. Flinn

Parent, 2024

Leap provided us with fantastic support on working with families. The two days of training they delivered provided staff with an honest platform to discuss proactive ways to engage families, to understand what is service business and what is family business, as well as reflection on their roles. The training provided a way of valuing and enhancing the role support workers provide and feedback indicated staff really appreciated the opportunity to learn and develop their skills and understanding. We look forward to working with you again! Thank you.

Parent Who Attended a Workshop. 2023

May 2016

Leap provided us with fantastic support on working with families. The two days of training they delivered provided staff with an honest platform to discuss proactive ways to engage families, to understand what is service business and what is family business, as well as reflection on their roles. The training provided a way of valuing and enhancing the role support workers provide and feedback indicated staff really appreciated the opportunity to learn and develop their skills and understanding. We look forward to working with you again! Thank you.

Parent Who Attended a Workshop. 2023

My first encounter with LEAP was in 2019 when I attended a family weekend with my three children, two of which have special needs and complex medical issues. As a single parent I was sceptical as to how the weekend would unfold but LEAP was extremely organised and there was lots of support for the children so I was quickly reassured. I was introduced to inclusion and ‘what a good life’ looks like and the role I have in helping my children have that inclusive good life. On one hand I felt extremely heartbroken at the thought of my children not experiencing an inclusive life and on the other hand I was extremely motivated at the prospects of my children living life to their full potential.
My children have two different diagnoses and up to this point I was a member of each respective special needs club and there was no club that welcomed both or all of my children just as they are. The special needs clubs segregate children and parents and only advocate for the needs of that particular condition. They don’t prioritise inclusion; in fact, they thrive on segregation and organise events and activities that keep “us” all together and away from the outside world. To me, this sends an indirect message to our communities that ‘we are different and we don’t want to be associated with you’.
LEAP helped me look at life from a different perspective, to see my children as just children, with different strengths, weaknesses and opportunities just like everyone of us.
I stayed linked in with LEAP and was able to liaise with Rachel on many issues which has helped me immensely on my life’s journey as a single parent with three children. LEAP has been very supportive and I’ve never felt alone and when I questioned my own direction, I was gently guided by Rachel to stay on track.
In 2024 I attended LEAP’s ‘Leadership for Inclusion’ series and learned a lot about the history of disability in Ireland and the changing attitudes of our society. We discussed our basic human needs such as food, shelter and connections and also the importance of inclusion, participation and contribution to society. This led to hearing some amazing stories about our shared values and stories of the achievements of our children. LEAP has created a platform for families to network and connect with one another and open up discussion groups amongst us.
Thanks to LEAP I really feel that I am an integral part of this movement for change. Through their workshops I feel that I now share the same vision of ‘living in a community where we all belong’ and our differences are accepted.
Overall LEAP empowers families with valuable information and practical advice about inclusion and equality. They are there to support you and help you speak up for your children when faced with challenges, to reassure you, and even hold your hand. There is genuinely no other charity that I know off that offers this unique service. I feel its imperative that LEAP secure funding to continue its core mission and help in the creation of an ‘Ireland where everyone belongs’.

B. Jude

Parent, 2024

We are a family of five living in Laois with three sons, two of whom are on the autism spectrum. Ruairi, our eldest at 19, just finished school in June. We kept him in school an extra year as we were uncertain about his future. This year, with Ruairi eager to move on like his brother Oran, who was also finishing school, we began exploring local opportunities. Ruairi made it clear, saying, “I am the same as Oran, I want to go to college and get a job.” With his vision so clear, we began our journey.

While local services were helpful, they didn’t align with Ruairi’s goals. It was only when we spoke with the occupational guidance officer that we were introduced to Leap Ireland. That same evening, I spoke with Leap for 40 minutes, and they explained their approach. I was thrilled that Ruairi’s voice could finally be heard. Leap sent information about their services and connected us with other families to give us a clearer picture of what they offer.

After discussing it with Ruairi, we invited Leap to our home. Together, over four hours, Ruairi developed his vision with our support, and we created a plan for him to live a full, inclusive life. We later attended training at Leap’s Westmeath premises, which was invaluable. We met other families with similar visions, and Leap was always available for guidance, never making us feel like just a number.

With Leap’s help, we set up a circle of support, and since then, we haven’t looked back. Ruairi is excited to start college and engage more with the community. His personal budget will be available in September, and he’s already trying new things with our family and Leap’s support. We are confident Ruairi will attend college, find employment, and be a valuable member of society, just like his peers.

We’ve recommended Leap to many families, and once Ruairi is in college, I plan to advocate more for this choice. Everyone deserves to know their options, and without Leap, Ruairi’s story might have been very different. His future is now in his hands, with our support. We cannot thank Leap enough.

O'Reilly Family

Parents, 2024

 Hi Rachel,
I just wanted to personally thank you for all you gave us over the weekend. I didn’t properly hug you and thank you when you left. The work you along with Trevor and your team do gives steadfast hope and strength for us to continue to reach for our goals and dreams and the confidence to know we’ll get there. It’s scary at times (sometimes often!) but you really do help to take the fear away. Thank you, Rachel. I really do appreciate what you and Leap are doing for all of us at the weekends and for so many other families. I hope you now have some time for yourself to recover, rest and relax and bathe in the realisation that you are doing and instigating something mind blowing and wonderful.

Family testimony, Leadership for Inclusion Series, 2024

Parent who attended workshop, 2024